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The World of MS MuSings
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From Stuart
(Varying Topics of Interest) For
Caregivers/
Therapies/ Hobbies / Balos / etc
Stu's
Views and M.S. Related News:::
Disclaimer: This
website and blog is solely my own personal views and research.
I am not an expert in the
field of MS nor a medical practitioner
opt-out at any time by simply replying with
your request
==========================================================
"We must become the change, we want to
see in the world"- Mahatma Gandhi
The diagnosis of multiple sclerosis
(MS) causes a substantial burden on both patients and those who care for
them. Individuals affected by MS need information about the disease and
its treatment, as well as physical, financial, and emotional support as
they struggle to maintain their quality of life under very demanding
circumstances.
Botulinum toxin type A (BoNT-A) and cannabis-based
medication represent advances in therapy for MS symptoms such as spasticity
and bladder dysfunction. In addition, the psychostimulant modafinil appears
to improve cognitive function and fatigue when added to interferon (IFN)
therapy in the treatment of MS. Several studies presented at recent
congresses evaluated these new treatment approaches. Another study evaluated
a method to diminish injection-site reactions.
Cancer, Alzheimer's and Tumor-Related Therapeutics Now Able to be Tracked
in Hours
Case Center for Imaging Research One of a Handful in the Nation
New Oral Agents for Multiple Sclerosis, Including
Novartis/Mitsubishi Pharma's Novel Drug, Will Capture 25% of Market Share by
2020
»
Read More
A Rare MS-Like Disease
Like MS, Balo's concentric sclerosis (BCS) is a disease featured by
extensive damage to myelin, a protective, fatty sheath that covers nerve
fibers in the central nervous system. But unlike MS, Balo's concentric
sclerosis is very rare and the odds of survival are grim. Reportedly, people
diagnosed with this disease can die within weeks to months.2
| Deadline Nears
for DoD Funding Bill |
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| Contact Your Representative During the
Recess |
More Info |
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Interest continues to grow in providing $15 million to the
Congressionally Directed Medical Research Program for multiple sclerosis
(MS) research within the annual Department of Defense appropriations
bill. The upcoming Congressional recess will be a key time to
emphasize this issue. There are several ways you can reach
your Representative back in their home districts April
2-14. You can:
- Call your Representative's district
office.
- Make an appointment to visit with
your Representative in the district.
- Attend a community or town hall
meeting. Call the district office for a schedule.
To find your
Representative’s district contact information, visit: www.house.gov.
Ask them to sign on to the Dear Colleague letter being
circulated in the House of Representatives by Congressmen Russ Carnahan
(D-MO) and Rick Renzi (R-AZ). The deadline to sign on recently has
been extended until April 20.
Consider the following information when
speaking with your Representative:
MS is a chronic, often
disabling disease of the central nervous system and is generally
diagnosed between the ages of 20 and 50, the prime of life. There is no
cure for MS and symptoms are unpredictable. Current medical treatments
are not effective for many people and cannot be tolerated by many
others.
Unfortunately, the National
Institutes of Health, currently the primary source of funding for MS
research, is reducing its investment over the next couple years.
Supplementing current MS research with additional resources from the DoD
could help further investigate the causes of such neurological
disorders, explore additional treatments, and help find a cure.
Preliminary evidence suggests that Gulf War veterans could have an
increased risk of developing MS.
-
A recent study in the Annals
of Neurology, for example, identified 5,345 cases of MS among U.S.
veterans that were deemed "service-connected." The number of
service-connected cases was a significant increase from previous
studies.
-
An epidemiologic study found
an unexpected, two-fold increase in MS between 1993 and 2000 in
Kuwait, which suggests a potential environmental trigger for MS.
-
A 2004 report from a study
group commissioned by the VA suggests more research must be done on
the potential link between MS and combat service.
-
The Congressionally-mandated
Research Advisory Committee on Gulf War Veterans' Illnesses (RAC)
found that evidence supports a probable link between exposures to
neurotoxins and the development of neurological disorders.
The DoD has an obligation to fund
research into MS related to Gulf War service. This research would
not only benefit our Gulf War veterans, but could help move us closer to
a world free of MS for all those living with the disease.
Be an MS Activist. Join the
Movement at
www.nationalMSsociety.org/advocacy
To keep future MS activism messages out of your junk folder, add the
following address to your contacts or safe sender list:
MSActionNetwork@nmss.org |
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