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MS MuSings monthly online magazine By and For those with MS, Multiple Sclerosis August 2005
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Playing this page: Sweet Caroline Why is MonSter so Hungry? By Car (Carolyn Reynolds) I’m just wondering if anyone else has noticed the havoc our MonSter seems to be inflicting. It seems so many of us have been in his evil grasp, and the heat of our US summer has worsened symptoms for many. I hate to take it like I seem to have to, just always wish there was something, anything, I could do to stop this unwelcome attack for all of us. If it was just my own exasperation I suppose I wouldn’t be so befuddled about it, but it seems to be attacking most all of the Msers I know. Little nibbles, and big bites, it just doesn’t seem willing to let up and give us a break already. Have we been too lucky for too long? My doc seems to think I’ve remained relatively stable for the past five years, but darn it, I’m not feeling all that stable here lately. Little things that maybe shouldn’t bother me anymore have come back to visit again. Shoot, I try not to be such a good hostess, but it doesn’t matter to that MonSter. I don’t think he’s notice the difference between an open armed greeting and a kiss my *** response. It’s a sure thing that we have very little say in any of this mess called MS. I want a cure. Heck, I would settle for anything that offered just a little bit of peace of mind, but that sure doesn't seem to be any closer to happening than it was over seven years ago when I was diagnosed. Nobody will even attempt explaining how something that affects each person so differently can still carry that title of Multiple Sclerosis. For one a relapse is just a little inconvenience, for others of us we fear every relapse will leave a little less of us behind. I have to wonder what happens to all the bits and pieces of so many lives that get collected by the MonSter. I hope he’s keeping all that in a lock box someplace, but I suspect he maybe just scatters all that was so important to us to the winds, or maybe he lines his litter box with it all. Heaven knows I sure do feel like something’s crapping on me here lately. Is that why MS seems to strike people who are talented or skillful, and always intelligent? Well it’s just got to be why. . . . the silly MonSter is using us to make himself better, more talented, more skillful, and smarter than the average debilitating disease. I’d hate to think that all those bits and pieces of myself are just thrown away. I worked too hard to get what I had to want to see it all just scattered to the wind. Tell you what. . . . I gave up snipe hunting many years ago. But how about we get up an MS posse and head out on our own cyber MonSter hunt? Maybe it could even be fun? Ya think? Searching all of the heavens and maybe earth too for an over-stuffed MonSter and holding him hostage until he gives back every single attribute he’s stolen from you and from me. Have I got any takers? Surely some researcher in his or her starched white lab coat would take his off our hands and we could just pass out our bits and pieces to all the good folks who have given them us to the MonSter we call MS.
Reach Car by email to comment: reynolds@psci.net or car@msmusings.com |