A Monthly Online Magazine
By and For Those
Who Live with MS,
Tables of Contents
This is Gallery Page 5
Click the name of the writer you'd like to see!
Needless to say, I love the MuSings. Not just because you
will print my article but because I have been reading it for some time and gives
one hope and expression.
Lance with wife, Patty.
Hello, My name is Lance K Jeffrey. About 12 year ago, I lost feelings in my legs. I went into the hospital, and stayed a week. They did a spinal tap on me and other tests and I was told that a virus was found. Went home, felt better and never thought another thing about it. My wife, and myself took a job working on 6000 arced exotic game Ranch, and I spent a lot of my time working outside. Taking care of the 4 acre Manicured lawn, before the guest would arrive, and than would spend the rest of my time inside cooking exotic meals with my wife. That's when the fatigue, and double vision started. After lots of visits, and finally a visit to a Neurologists, and another MRI, we were told in Aug 1998 that I had M.S.
I did Private Investigation work for over 15 years prior to the Ranch.
My wife Patty, and I have 3 beautiful children, two sons and a daughter. We take life one day at a time. One thing we do have is LOVE, and there is no amount of money in this world that can ever buy that.
I, myself, love to Play the Fiddle and Guitar and write poetry.
The poetry helps me be happy, by sharing my deepest feelings with others who are going through the same things that I experience.
Reach Lance by email to comment: firstname.lastname@example.org
Hi, my name is Joanne Marsh. I am 32 years old, married to a wonderful man, Jim. I have two awesome kids, Hillary 11 and Taylor 8. I live on a small island in Newfoundland, Canada. I practiced cosmetology for ten years. I owned and operated a small Hair Boutique until my MS diagnosis in 1998. Because of the physical and mental demands on me I was no longer capable of running a proficient business.
Since that time, I have put all my energy into being a good mom and wife. I am a Christian and regularly attend The Salvation Army where I am involved to the best of my ability. I am fond of music so I sing and play a little guitar. I am also very fond of writing.
With the obvious challenges surrounding MS, I have been afforded ample time to cultivate my writing interests. It's funny you know, as a high school student, I was inclined to further my education in Literature and Language. Due to the lengthly college program I reneged on that decision. Now as I have been forced to leave my occupation, I am able to work on that goal.
I was introduced to Musings by Darin, who is a writer here. I met him at Jooly's Joint where I have made some fantastic friends. Most people from JJ's would know me as Jojo. Writing for Musings has given me the opportunity to express myself and reach out to others who are hurting. I have also started my own website, http://www.geocities.com/glendajojo/index.html and I have a piece posted at http://www.relatemagazine.org , another online magazine that is produced for Christians with disabilities. I am also glad to report that I have a Publisher who is willing to publish my book that I wrote last year. So, as you can see, Multiple Sclerosis hasn't really gotten the best of me yet. In some ways, I count it as a blessing.
I look forward to writing for Musings. I am trusting that all who read my work might be inspired and comforted. Keep in mind that I am just another person just like you and am really, nothing phenomenal. Just like all you gifted people that write for Musings, I feel blessed to be able to share a small part of me. Feel free to email me at:
I now live in Bradenton, Florida but have lived all over the country during the past 45 years...Born in Paterson, New Jersey the family moved to Lansing, Michigan when I was ten years old. I was married in Lansing, Michigan in l957. I moved to Clinton, IA the same year and a year and a half later moved to Kansas City, MO. Greenville, South Carolina was the next stop a year later. My eldest son was born there in l959. We then moved to Charlotte, North Carolina and my second son was born there in l960. A Christmas trip home that year helped to make the decision to move back to Michigan where we lived for the following 3 years and added another son to our growing brood.. My husband had gone from being a kitchen designer to being an educational film producer. Our next move was to Chicago, Illinois......and then on to Connecticut where my husband's work was in New York City and the big time.
Our daughter was born in Stamford while residing in CT. From there we moved on to Dallas, Texas to set up a film division there. But events did not go as planned.. There was a divorce and a move back to Michigan for the children and me. Our lives were changed drastically. I was now working for the first time in 15 years and found my niche in politics. I worked for the Republican party at the county level and then the state level for the next ten years. I then met my second husband and was married again in l981. He and I moved to New Port Richey, FL in l986. I then became employed by the Lighthouse for the Blind and three years later I took an Executive Director position with the American Cancer Society in Bradenton, Florida, which was 100 miles south of New Port Richey. Everything was wonderful and life was great until I became ill and within a couple of years was diagnosed with MS. A month later my husband had a devastating stroke that placed him in a nursing home.
My health made it impossible for me to work, so consequently I retired and stayed at home. This caused a major change in my lifestyle...one that I am still trying to become accustomed to. It has not been easy but one perseveres the best they can.
I was introduced to KLINKS Chat Room early on in my diagnosis of MS and met some wonderful people who are still my friends. The relationship with this wonderful group has in all probability saved my sanity....and I love them dearly.
I thank you for the kindness' and love shown to me...and also
for allowing me to share, humbly, my feelings through my writings.
I live in Lethbridge, Alberta, Canada with my wife and three boys (ages 22, 20 and 15). I've had M.S. since 1986 and was diagnosed in 1991. I left work on a disability pension in 1996 and have been unable to work since that time. Up to that point I had been a rehabilitation professional, and had obtained accreditation and certification as a Canadian Rehabilitation Counselor.
Since being on Copaxone for 2 and 1/2 years, I am finally able to have enough energy to enjoy the next biggest love of my life: music. I have been playing and teaching music for over 30 years. I play keyboards and guitar in a local band, and back up a gal who had a #2 hit in Europe. Incidentally, I had the honor and privilege of playing in Europe in Feb. of this year backing up country indie artists. I've also had poetry published in numerous publications and received a second place standing in one competition.
To sum up, I have tried not to let MS control my life. Some of my greatest personal accomplishments have come after my diagnosis. It proved to me that despite my disability, I can still contribute and achieve goals.
David and wife, Sandy
Born 1952 in Liverpool, England, I moved to N.Z. in 1961 with my family and permanently settled on Aucklandís North Shore. Educated at Rangitoto College, I left there in 1968 with School Certificate and University Entrance accredited, to join an insurance company. Shortly afterwards I joined a local Ford dealership where I remained for 11 years, rising to Office Manager. I married during this period and in the mid 1970ís I first noticed what I was later to realise were my earliest symptoms of Multiple Sclerosis. I did not receive my MS diagnosis until 1982 during my 5 year term as Office Manager for a family owned group of vehicle service centres. My next job, as assistant to the accountant at a plastic injection moulding company, took me through the following 11 years until I left to live in Florida. Two years later I was back on the North Shore where I live independently, with some personal assistance, with my wife of 1 year, Sandy, who also is PwMS.
MS Society Involvement:
I joined the North Shore MS Society in 1984 and was elected onto their committee in 1985. I have remained on the committee, with the exception of the 1996/7 and 1997/8 terms when I was living in Florida, since that time, during which I had two terms as Vice-President and three terms as President. With the support of committee, I established a support group for Ďnewly diagnosed and working people with MS and their partnersí During 1994/5 I was a Board Member of the MS Candy Project, a nationwide fundraising initiative. Since my return to NZ, I have been editor of the North Shore MS newsletter and have been a sometime writer for MSMusings, an internet magazine for PwMS by PwMS produced in America. In 1999 I helped establish a self-help menís mutual support group, predominantly attended by PwMS who had met at other functions but who needed the support of a peer group. All this involvement stems from a desire to help those in a similar situation and to guide others through the challenges of MS as it progresses, all from a position of intimate knowledge of the condition.
While living in Florida in 1996/7, I joined the Tampa Chapter of the National Multiple Sclerosis Society and attended all the meetings of the St. Petersburg MS Support Group, where I was able to participate in many interesting exchanges of information.
In 1972 I was actively involved in establishing the East Coast Bays CitroŽn Car Club, now known as North Harbour CitroŽn Car Club. During my involvement since then, I have served various terms as Secretary, Treasurer, Club Captain, President and Newsletter Editor and have also been involved with the organization of several N.Z. National Rallies of Citroen Owners. I am presently a Life Member in recognition of past services.
During the latter part of 1997 I was asked to consider the position of Secretary for disAbility Information North Shore Inc. (DINS), a position that I accepted at their 1998 AGM and which I still hold. In 1999 I received a Community Recognition certificate at the North Shore Community Organisations & Services Volunteers Dinner for this service. At the DINS 2001 AGM I also accepted the role of Treasurer.
Since 1989 I have attended Auckland University of Technology as a model for the students training as Physiotherapists. I see this is a two-way transfer of knowledge and benefits. The students learn from my knowledge of MS and active participation in their training, and I benefit from the exercise routines that they carry out on me.
For three years I have been registered with Auckland University Medical School as a volunteer for study as a person with a chronic illness living in the community. Several times a year I am interviewed by either second year nursing students or 4/5th year medical students. I enjoy the opportunity to pass on both knowledge of MS and experiences I have had with health professionals over the years.
Always having been fond of gardening, I joined the St. Petersburg Garden Club in Florida to learn how to meet the challenges of successfully growing anything in such extreme temperature and 100% sand. After a short while I was co-opted onto their Grounds Committee in charge of their propagating area.
Travel with M.S.:
In 1984, my wife, then, and I decided to take extended leave and travel extensively throughout Europe and the U.K. Only two years after my diagnosis and not needing any mobility aids, we considered that such a trip would be quite manageable. However, fatigue took its toll and I spent three weeks in hospital in Interlaken, Switzerland, recovering from double pneumonia. The interesting aspect of that stay was that none of the resident staff had ever encountered MS before, and so were very interested in me and my condition - probably my first experience of educating others in MS. My wife worked in the travel industry and so we traveled abroad frequently, quickly learning the best ways to make the journeys less physically taxing, and the options available to those traveling with impairments.
By 1990 I was using a cane full time and a wheelchair as needed. In 1995 we traveled extensively in Florida and then took a three week cruise from Miami through the Caribbean, Panama Canal, Costa Rica, Mexico, California and Vancouver. By 1997, when I was living in Florida, I was using an electric scooter fulltime but still we managed to cruise the Western Caribbean, Guatemala, Mexico and the Gulf.
On both these cruises, and when traveling in general, people were always interested in my condition and marveled at my determination to lead a fulfilling life.
My wife and I live in our own home, adapted to our needs. We have wheelchair access into the home, fully adapted kitchen and bathroom, and a large bedroom complete with electric beds and a hoist for me. I receive personal care morning and night, and have people managing our housework, lawns and gardens. I prepare all meals for ourselves and we attend to our own shopping, using our scooters, and are able to access many services this way. Mostly a well cultivated sense of humour in all things, an awareness of each others condition, a very good support network including the MS Society, caregivers, service providers, family and friends, and a sense of worth within the wider community, gets us by daily.
The desire to be of assistance to others wherever possible, regardless of their condition, is my strongest motivational driving force.top of page
I was diagnosed with MS in April of 2001. I was in shock. I had been working as a convenience store manager for only 2.5 months, after managing Burger King restaurants for nearly 15 years. I didn't know what it was like not to get up and work nearly 70 hours a week.
In 1998, I lost my mother to cancer and in 1999, I lost my father to his depression over my mother. I was determined to make something of my life and use the things they had taught me.
I am 35 years old, divorced. and have an 11 year old son and a 10 year old daughter, who now reside with a cousin. They are the inspiration for all I do.
I had always been one who wrote better than I spoke, so I decided, when I was put on "permanent vacation", that I would pursue my desire to write. I am currently in the process of putting together my first book, entitled "Unbroken Desire", which is an historical romance.
I hope, in some way, that the ideas and fantasies that I put on paper, will inspire, soothe, and help someone, in some way, to remember the life that God has given us and help us to move on and be of inspiration to others.
Enjoy, love, and laugh with your angels, as I do with mine.
Thank you, Carolyn, for giving me and others, an outlet for our MuSings.
Debbie Lynne Cox email@example.com
Hi all! I'm Sandy (the one with the MSonster) and
the good looking guy with me is my husband, Scott.
Patti on the left
My name is Kris Lipartito. I am the youngest child of Ron and Shirley Crooker and yes, Iím spoiled. I am thirty-six years old and have been married to the most wonderful man on earth, Michael, for seventeen years. We have three beautiful children and a dog named Blue. I am a stay at home mom and enjoy volunteering in my childrenís schools for a variety of activities. I take college courses at night. Currently I am taking Sociology. I have no goal at this time regarding my educational aspirations. I just enjoy learning. I have had ms for seventeen years and am doing well. I canít walk a straight line, which can be a problem if I decide to take up the tightrope or cross a raging river via a log. Otherwise, the fact that I canít put one foot in front of the other isnít really a problem for me. I am on Avonex and have been for four years. I am doing well on this treatment though I do grow tired of the injections. I live a full and generally happy life. I enjoy reading this online magazine and the many contributions of its readers.
(See Ron and Shirley also in the Gallery)
O.K. So, I guess I'll tell ya a little about myself...
I was diagnosed with R/R M.S. April 2001 and I am on Avonex, going to Rebif soon. I am doing real well and, thankfully for me, it hasn't changed my life that much at all! I have decided to go back to college to get my Associates Degree in Computer Information Technology and will be in my 2nd semester in January 2003! I moved to the Springfield/Branson, MO. area Sept. 2001 from the Chicago/Milwaukee area. I live out in the country in a little 2 bedroom house with 4 lots and one of those lots is where I will be building the house designed sometime in the Fall of 2004, if everything goes as according to plan! I have no kids (that I know of), yet and I live alone (recently divorced - Thank GOD!) with the exception of my best friend, my Beagle, Buster.
I have been a musician since I was 5 years old. I'm a drummer and vocalist, mainly, who wants to be a guitarist - lol. I play a little guitar, bass, keyboards, and sax. I also was a harmonica player/lead vocalist for a Blues band for 3 years and I am an aspiring songwriter in a songwriting group. I also write poetry. My main form of music is, has, and will always be the Blues, though I am deeply rooted in Country, too, which isn't that far off from Blues, I have been in:
50's/60's/70's Rock bands
several Blues bands
several Country bands
a Jazz band
a 9 piece Funk band
an 'Electronic' band doing original songs
an Acoustic band also doing original songs
Anything else you want to know . just e-mail me at Van_Lawrence@msn.com. I will answer all questions, within reason, you may have. I'm pretty open and maybe too honest! LOL.
Profession: Quality Assurance Engineer Age: 54 Years
Nationality: English Diagnosis: Secondary Progressive Date of Diagnosis: 1992
At present I love Golf and used to play off 5 handicap now I will be lucky if I can play to 20 Handicap, using my golf cart but still love the game. I retired early due to my disabilities, but still keep myself busy with my faithful PC, writing the odd poem and the like. I also have 3 grandchildren (all girls) two live in Ontario with my daughter and her husband.
I am not a negative person and believe I will walk a reasonable distance without sticks in the future, it may be a while away but nothing worth waiting for comes easy.
In 1990 I was involved in a motorcar accident and believe this was the trauma that triggered the beginning of my Multiple Sclerosis attacks.
During the year of 1991 I started to tire quite quickly and my left foot began to drop. Theses were my first MS symptoms. Later I could not flex from the ankle. I could not lift my foot from the knee or hip. My left hand was claw like and weak and I could not straighten my arm in an upward direction. I had no energy or stamina and walked with the aid of a stick. My walking distance was approximately 25 meters
The only treatment I could receive here in the UK was steroid after an exacerbation. I was anxious because I was aware there was no know cure or effective treatment available to date (1997).
After chatting with a email friend Gary Shane from USA he told me of his visit to a Dr in Athens who prescribed low dose Mitoxantrone. So after my own research I went and had this treatment for about 30 months from October 1997 to March 2000, it meant a trip to Athens every 3 months. I stopped deteriorating and improved from 3.5 to 2.5 on the EDSS scale. Of course I have now reached my maximum dose.
Since stopping the treatment I have again deteriorated and currently about 4.5 on the EDSS scale.
I hope to start Beta Interferon in April of this year, if the NHS have the funding in place. If that fails to work for me then I am considering a stem cell transplant.
In the mean time I try to keep fit doing various stretches, use a electrical muscle stimulation and exercises with assistance. I also have a regime of vits and mins designed by a nutrition advisor.