New Page 1

_{When we are sick for a month or longer,
sometimes running to doctors and lying around is about all there is to do. I've
put a different little survey on Editor's Notes, too.}

_{But here are some of my ponderings......}

_{Why are so many of you falling away? I
know about MS, believe me, folks.}

_{When I started this magazine in 1999, I
could walk with a cane. It wasn't pretty but I could do it. But to tell you the
truth I soon found a walker on wheels handy for carrying things. I was managing
what work at home I could, but the magazine soon became my savior. I loved
writing for it, reading what was coming in each month. I was on Avonex, for r/r
MS though nobody really knew what I had. Soon switched to Beta Seron for over 6
years. I stopped helping, so did Tysabri for 2 years.}

_{At this point out of the blue my
neurologist sent me to Indiana's big hot shot MS specialist, I guess so he could
inform me I have now become secondary progressive, and nothing can be done for
me. I had to talk him into letting me try Novantrone and he reluctantly did.}

_{I went back to the Oncologist who had
managed my Tysabri. Here I got the first IV infusion of Novantrone.}

_{Within a couple of days I couldn't
breathe, borrowed oxygen and made the trip back to Evansville. My Oncologist
admitted he wasn't sure, but it could be pneumonia so off to the floor in the
hospital I went into a sterile environment. After some tests, it was discovered
I had blood clots on each lung, and many in a leg. One of the specialists
on my case said this kind of clotting was usually an indication of cancer... Oh
boy. Off I went to get the lump I thought was caused by an injury biopsed. Oh
yes, it was cancer.}

_{Off to see a surgeon, more tests. We were
just about ready to proceed with chemo before surgery, when same doctor wanted
bioposy on my lady parts. Yep, cancer of the uterus.}

_{A lot of prayers, and trust worthy
doctors got me through. But I have had more blood clots since. I now have an
abdominal mesh shield to keep them from moving to my chest.}

_{Now......I know how MS has mistreated so
many of you, but I still want and need you to set your creative side free. It
just may save you.}

_{Just think, I am now in an electric
wheelchair, arm is going numb, so I am not out of the MonSter's grasp at all. I
am nobody to look at and,say why is she doing so well.}

_{We have writers here who are now
paraplegic, quadraplegic, but now use voice recognition software.}

_{This magazine has kept me going...maybe
it can do that for you, too.}

FDA required disclaimer:
Any treatment or nutritional product mentioned on this site is not intended or claimed to diagnose, treat, cure or prevent any disease.

MS MuSings does not endorse any particular treatment for Multiple Sclerosis. We encourage you to talk to your own doctor before engaging in any treatment options you may find here.

We like to keep our magazine accessible to readers of all ages. Please consider that when you submit something.

If any change is needed I will let you know.

All that you find here is protected by copyright. Please get permission from the author or the photographer before using anything you find here.

Reach Car by email to comment or to submit: carreynolds0291@sbcglobal.net

Car is in our Gallery!

top of page